A Little Help, Please...

On May 13, 2008 Representative Tom Udall introduced a Cavernous Angioma Resolution in the House of Representatives-Resolution 1193. Check it out here. It now resides for review with the Subcommittee on Health.

What does that have to do with anything? Oh, just about everything. You see, Bob's Big Brother was diagnosed with Multiple Cavernous Hemangiomas many years ago. And thanks to the pissy little buggers, we grapple daily with the resulting seizures, neurological damage, and behavior disorders that are the result of them...

We also grapple with a lot of frustration. It's one of those disorders that the public doesn't know much of anything about, or cares to know about. Up to now, we've been underrepresented, underpublicized, and frankly, it's sort of been like no one really cared. Especially our government.

My child... our children, our fellow citizens... need your help. It’s time to begin faxing and calling your Congressional Representative and the members of the Subcommittee on Health. Please. Go here to find a template letter. I urge you to print it out and send it. Then I urge you to urge everyone you know to print it out and send it.

To find the contact information for your representative, go here. For the members of the Subcommittee on Health,go here.

For more info, on both this resolution and angiomas, go here.

And you know, if you're a fellow blogger and are looking for a topic, well, ahem, I'd love to have you help spread the word.

Here's a cool widget for you too, just scroll down. Please? See. It's pretty.

Angioma Alliance

I thank you.


*And a special thanks to Angioma Alliance for fighting the good fight.


*OH LOOK!!! They blogged, they blogged!!! WOOHOO!! Thank you Mags, Gillian, Harry's girlfriend MJ, and Linda.

More FYI links:

Go to YouTube. Meet Mark W. Seymour at the Care and Feeding of a Cavernous Angioma. Read about Green Christine-losing weight to raise $$$$ here. An article here. The Brain Surgery Journal blog here.